We may be entering this same struggle. Waiting for neurologist on 21st and probably many more tests. Preliminary MRI seems to point that direction however. Hoping it's wrong. Fearing it's not. Current symptoms line up. We shall see.
Just breathe. I know those fears and often they are unfounded. I will say....
Check EVERY medicine you have or are taking. Then go to Twitter and type Serotonin syndrome. If you are in Canada..DIRECTLY ask ALL of them if they are performing research ON you. Trust me....look at EVERYTHING you are eating and ESPECIALLY diagnosed medications. The world will be surprised regarding serotonin syndrome and an awful lot of neurological diagnosis/symptoms.
STAY AWAY FROM MELATONIN AND ESPECIALLY GRAPEFRUITS AND GRAPEFRUIT JUICE!!!!!
You are in my thoughts. Read the above with a very deep breath. Make sure you aren't being researched ESPECIALLY if in Canada. Trust me on that.
Will look into this. We're in the US unfortunately. It's hubs that is the patient. He doesn't really take meds (except Baclofen now, due to the spasms) so I know it's no interactions.
We're trying to breathe at least. Hard not to panic, but we both keep telling ourselves to wait and see. EMG on 21st and neurologist will maybe add more detail and clarify.
Definitely noted on the melatonin & grapefruit juice tho. He doesn't typically partake of either, but no sense adding insult to injury, yes?
Keep us in your thoughts & we will update as we know more. Be well & be safe. 🖤
Thank you for both wait and being there. So far, still more tests and waiting games. We got the EMG done but have heard nothing on results. Her saw a neurosurgeon yesterday (mostly to rule out pinched nerves in spinal column etc). He sees a neurologist (not sure why a neurosurgeon was first but w/e) but not until August. 🤦🏻
Will have MD visit before this but I doubt they will do anything until the neuro visit. The horrible thing is, he's still in pain, muscular symptoms are worsening and no one wants to treat his symptoms till they know what the cause is. I get that, but the constant pain is eroding his mental health & putting him in a dark place. He's convinced no one will help. I don't know how to deal with that & the depression w/o seeming to dismiss his pain and opinions. I am trying to be supportive but feel like I'm unable to say the right thing to help him get through this. It's so infuriating to watch someone you care about in pain with no recourse. Hoping there will be a break in this, for his sake. Makes me wish we were in Canada or some place with even marginally better healthcare system. It is what it is though I guess.
Congratulations btw. I wish all the best for you both. ❤
Get doctor to order FULL blood tests. Get all 4 iron tests done. Look at B12 and make sure not high. Then look at creatine in urine.
Check EVERY medicine in cabinet for reaction with ANY medicines. Stick tongue out and look for tiny quivers.
Breathe.
Research serotonin syndrome. Watch for a white paper from 3 next level neurologists with massive credit given to "anonymous assistance"
For the love of God....no grapefruit, melatonin, honey or MAKE SURE IRON TESTS ARE FULLY DONE NOT JUST HEMOGLOBIN AND CELL COUNT. No shit....force them to look for anemia with iron saturation
Thank you for this! Will definitely advise hubby as well. We will talk with MD on the next visit on the 15th and I'm fully prepared to go to different docs if no help is forthcoming. Will update again once we have new info. Keep us in your thoughts & Godspeed to you!
Happy New Years to you as well. To that point it is a few hours away from the New Year and I would love to be as positive as possible in 2023 and beyond.
I honestly don't care about your story, I never have! Sorry for your loss and I mean that. My goal since 2014 was to be left alone and not defamed and harassed.
Most people don't realize that you and I were on friendly terms for a while back then 2014-2015.
Many people have attacked myself, my family, and defamed and harassed in large part due to your actions.
If you recall when you try to intervene in the KNation situation the agreement was that we not post about each other and simply move on.
The only reason I came to this Substack is because I was being defamed and my name was being posted and called out. Knowing me you had to know I would respond to that. I am not going to give any assurances for how I might respond and it may be in person.
I don't care about you at all and would rather you just remove yourself from my life and forget my name.
To that end. I hope in 2023 and beyond you simple move on and drop my name or context from everything along with your crew. If that is the case I have no reason to talk to or about you.
I hope this is the last time I write anything to you publicly.
Thinking of you and your son at this time. Know that the memories you have will last forever and she’ll be watching over you from above - all great tribute songs to honour your best friend. 🙏
So much respect to you and your family and all you have done for them. You are one in a billion. I bet she is smiling from above, knowing how much she was loved.
We may be entering this same struggle. Waiting for neurologist on 21st and probably many more tests. Preliminary MRI seems to point that direction however. Hoping it's wrong. Fearing it's not. Current symptoms line up. We shall see.
#pinsNneedles
Just breathe. I know those fears and often they are unfounded. I will say....
Check EVERY medicine you have or are taking. Then go to Twitter and type Serotonin syndrome. If you are in Canada..DIRECTLY ask ALL of them if they are performing research ON you. Trust me....look at EVERYTHING you are eating and ESPECIALLY diagnosed medications. The world will be surprised regarding serotonin syndrome and an awful lot of neurological diagnosis/symptoms.
STAY AWAY FROM MELATONIN AND ESPECIALLY GRAPEFRUITS AND GRAPEFRUIT JUICE!!!!!
You are in my thoughts. Read the above with a very deep breath. Make sure you aren't being researched ESPECIALLY if in Canada. Trust me on that.
Will look into this. We're in the US unfortunately. It's hubs that is the patient. He doesn't really take meds (except Baclofen now, due to the spasms) so I know it's no interactions.
We're trying to breathe at least. Hard not to panic, but we both keep telling ourselves to wait and see. EMG on 21st and neurologist will maybe add more detail and clarify.
Definitely noted on the melatonin & grapefruit juice tho. He doesn't typically partake of either, but no sense adding insult to injury, yes?
Keep us in your thoughts & we will update as we know more. Be well & be safe. 🖤
I am here. I've waited. How are you?
Thank you for both wait and being there. So far, still more tests and waiting games. We got the EMG done but have heard nothing on results. Her saw a neurosurgeon yesterday (mostly to rule out pinched nerves in spinal column etc). He sees a neurologist (not sure why a neurosurgeon was first but w/e) but not until August. 🤦🏻
Will have MD visit before this but I doubt they will do anything until the neuro visit. The horrible thing is, he's still in pain, muscular symptoms are worsening and no one wants to treat his symptoms till they know what the cause is. I get that, but the constant pain is eroding his mental health & putting him in a dark place. He's convinced no one will help. I don't know how to deal with that & the depression w/o seeming to dismiss his pain and opinions. I am trying to be supportive but feel like I'm unable to say the right thing to help him get through this. It's so infuriating to watch someone you care about in pain with no recourse. Hoping there will be a break in this, for his sake. Makes me wish we were in Canada or some place with even marginally better healthcare system. It is what it is though I guess.
Congratulations btw. I wish all the best for you both. ❤
Hold hands.
Look deep in eyes.
Breathe.
Get doctor to order FULL blood tests. Get all 4 iron tests done. Look at B12 and make sure not high. Then look at creatine in urine.
Check EVERY medicine in cabinet for reaction with ANY medicines. Stick tongue out and look for tiny quivers.
Breathe.
Research serotonin syndrome. Watch for a white paper from 3 next level neurologists with massive credit given to "anonymous assistance"
For the love of God....no grapefruit, melatonin, honey or MAKE SURE IRON TESTS ARE FULLY DONE NOT JUST HEMOGLOBIN AND CELL COUNT. No shit....force them to look for anemia with iron saturation
Thank you for this! Will definitely advise hubby as well. We will talk with MD on the next visit on the 15th and I'm fully prepared to go to different docs if no help is forthcoming. Will update again once we have new info. Keep us in your thoughts & Godspeed to you!
I call bullshit on your entire story
I politely asked you leave me alone. You refused.
You have my attention
Story is utter bullshit. Utter lies. You don't know how much we know about you.
The best part is that I shall meet you to ask you critical questions in person in 2023
https://open.substack.com/pub/tundra/p/a-start?utm_source=direct&r=1f07v4&utm_campaign=post&utm_medium=web
Happy New Year. Best of luck.
Happy New Years to you as well. To that point it is a few hours away from the New Year and I would love to be as positive as possible in 2023 and beyond.
I honestly don't care about your story, I never have! Sorry for your loss and I mean that. My goal since 2014 was to be left alone and not defamed and harassed.
Most people don't realize that you and I were on friendly terms for a while back then 2014-2015.
Many people have attacked myself, my family, and defamed and harassed in large part due to your actions.
If you recall when you try to intervene in the KNation situation the agreement was that we not post about each other and simply move on.
The only reason I came to this Substack is because I was being defamed and my name was being posted and called out. Knowing me you had to know I would respond to that. I am not going to give any assurances for how I might respond and it may be in person.
I don't care about you at all and would rather you just remove yourself from my life and forget my name.
To that end. I hope in 2023 and beyond you simple move on and drop my name or context from everything along with your crew. If that is the case I have no reason to talk to or about you.
I hope this is the last time I write anything to you publicly.
Happy New Years.
https://open.substack.com/pub/tundra/p/butbutbuti-thought-yall-said-my-wife?utm_source=direct&utm_campaign=post&utm_medium=web
💔
I am so sorry for your loss. 💔
She's flyin', singin', and sleepin' with the angels for sure, for sure.
My condolences, sir.
I'm so sorry for your loss...celebrate the life, love, and memories today and always!
Thinking of you and your son at this time. Know that the memories you have will last forever and she’ll be watching over you from above - all great tribute songs to honour your best friend. 🙏
I’m so very sorry for your loss. I’ll be keeping you and your family in my heart. May memories of better days bring you peace🫶💔🫶
Janai
May she find both peace and rest after all this time. My heartfelt condolences to you, your son, and all who have enjoyed her care and company.
Never an easy journey, but there is peace at the end always. May her light forever shine from the stars to watch over those left behind.
-memento mori.
My heart breaks for you all 💔 I'm so very sorry.
So much respect to you and your family and all you have done for them. You are one in a billion. I bet she is smiling from above, knowing how much she was loved.
So sorry for your loss. Peace be with her and your memories will comfort you. 🙏🙏
Love & Light sent your way from K3L.
https://m.youtube.com/watch?v=PTLSvw6xTPM
May peace be with her among the stars.
So sorry for your loss Dale and son! May her memory bring comfort and peace